Precision medicine ethics: Navigating genetic screening with care
Автор: Sano Genetics
Загружено: 2024-10-08
Просмотров: 386
Описание:
With the dramatic increase in precision medicine research, there is a growing need to consider the ethics of genetic screening programs. This webinar, hosted Sano Partnerships Lead Lindsey Wahlstrom-Edwards, dives into different types of genetic screening programs, provision of services, and the ethical considerations of population-level testing programs. The conversation focuses on programs in the United States, and touches upon the federal protections granted through GINA and coverage for individuals diagnosed through testing that is provided through Medicaid and other federal programs.
Guests include
Erica Barnes, Executive Director, Minnesota Rare Disease Advisory Council
Christine von Raesfeld, CEO, People with Empathy, & Committee Member, Partnership for Quality Measurement
Jean Swidler, Executive Director, End the Legacy
Molly McGinniss, Sr. Director, Client & Partner Relations, PopGen Counsel, Genome Medical
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