reALLERGIES Podcast Premiere: “We Can Help You Live With It” — Managing FPIES Day to Day | Part 2

Описание: Welcome back to the premiere episode of reALLERGIES Podcast — a series exploring FPIES (Food Protein-Induced Enterocolitis Syndrome) through the combined perspectives of patient, parent, and clinician. In Part 2, Fallon Schultz (Founder & CEO of the International FPIES Association) is joined again by Dr. Anya Nowak-Wegrzyn (Chief of Pediatric Allergy at NYU Langone) and Fallon’s son Landon, a teen living with FPIES, as they dive into the realities families face after diagnosis: fear around food, the trauma of reactions, and the exhausting “waiting game” of oral food challenges.

Dr. Nowak-Wegrzyn explains why one of the biggest unmet needs in FPIES is a reliable diagnostic test — because right now, the “gold standard” is still the oral food challenge, an all-day, high-stress process where families often go in with little certainty. Fallon and Landon share what this looks like in real life: the travel, the scheduling headaches, the anxiety, the toll on school and sports, the difficulty of IV access, and the emotional weight of not knowing what will happen next.

But Part 2 also focuses on what’s possible. You’ll hear why most patients eventually outgrow triggers, what it feels like to finally “pass” a food after years of avoidance, and how families can build a healthier relationship with food even inside strict limitations. Fallon emphasizes the importance of clinical support that validates lived experience — and how the International FPIES Association helps bridge families to care, resources, and clinicians who truly understand this condition.

This episode closes with takeaway messages for parents, patients, and clinicians: keep an open mind, listen closely, start small, communicate with compassion, and remember this is a syndrome you can learn to live with — and you don’t have to do it alone.

📍 Next up: behind-the-scenes from AAAAI with the latest FPIES updates and advocacy work in action.
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