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Let's Talk About CVI

Автор: Pediatric Epilepsy Surgery Alliance

Загружено: 2024-12-28

Просмотров: 223

Описание: This session covers cerebral/cortical Visual Impairment (CVI), our current understanding and research, CVI visual behaviors, when to suspect CVI, and next steps.

SPEAKER:

Lacey Smith
Perkins School for the Blind
CVI Parent Community Manager at CVI Now

Lacey is the CVI Parent Community Manager at CVI Now and previously worked as a CVI Project Coordinator for the CVI Center at Perkins School for the Blind. Lacey has worked closely with young children with visual impairments, multiple disabilities, rare diseases, and dual sensory loss providing consult and support to the student, families, and their teams. Lacey has a Bachelor’s in General Studies with a Concentration in Early Childhood Education from the University of Kansas, a Master’s in Education as a Teacher of Students with Visual Impairments, (TVI) from UMass Boston, and a Graduate Certificate in Cortical/Cerebral Visual Impairment (CVI) also achieved at UMass Boston. Lacey’s interest was inspired by her 13-year-old daughter’s diagnosis of CVI and she continually strives to learn more and support families with all she has learned along her own journey.

***

Our mission is to enhance the lives of children who need neurosurgery to treat their seizures. We do this through our impactful programs, services, and research before, during, and after surgery.

Info + Resources: Our website contains information, downloadable guides, videos, and evidence-based knowledge to help you navigate your child's epilepsy surgery journey.

Parent Support Navigator Program: Our support navigators are trained in evidence-based peer support practices. They speak English, Spanish, French, Portuguese, Farsi, Hindi, and Malay Indonesian.

Surgical Evaluation Travel Scholarship: Up to $1,000 in reimbursed travel costs for families who seek an epilepsy surgery evaluation for their child more than 50 miles from home.

School Training: We help school teams understand your child's strengths and challenges after epilepsy surgery.

www.epilepsysurgeryalliance.org
Facebook: @PESAlliance
Instagram: @pedsepilepsysurgeryalliance
X: @PESAlliance

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