Видео с ютуба Eurordis

Rare but Real: Talking Rare Diseases (part 1/6)

Rebecca Skarberg explains why the clock is ticking for people with rare diseases

EURORDIS Black Pearl Members Award - Childhood Cancer International Europe (CCI-E)

Terkel Andersen, President EURORDIS at European Conference on Rare Disease 2012

EURORDIS European RD Leadership Award 2021 - Victoria Hedley, Dr. Enrique Terol, Dr. Birutė Tumienė

EURORDIS Black Pearl Leadership Award - Dr. Anne-Sophie Lapointe

Eurordis on Mental Health

Rare Disease Day 2013 Message from the European Rare Disease Organisation (EURORDIS)

Living well: the mental health of people with rare diseases

EURORDIS Awards

EURORDIS Member Award 2021- AKU Society

EURORDIS Company Award for Health Technology 2021 - Epihunter

Fabrizia Bignami (EURORDIS), speaks about 10 years of Orphan Drug regulation in Europe.

EURORDIS Policy Event 2014 (2/8) Topic 1: Vision of Patients

EURORDIS Black Pearl Gala Dinner

EURORDIS Black Pearl Awards 2021 | Sammy Basso

Rare but Real: Talking Rare Diseases (part 4/6)

EURORDIS Summer School Feedback