The Ehlers-Danlos Society
The Ehlers-Danlos Society is a global organization dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.
Our vision is to create a world in which each person living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders has the right treatment and care at the right time for their specific needs. Find support and information at ehlers-danlos.com
Any medical information found here should be discussed with your doctors thoroughly before taking action.
2024 - Q&A Session - The Clinical Application of Nutrition in EDS and HSD: Specialist Considerations
2024 - Q&A Session - Implementing Personalized Nutritional Strategies
2024 - Q&A Session - Clinical Considerations of Nutrition in EDS and HSD: The Comorbidities
2024 - Q&A Session - Foundations of Optimal Nutrition in EDS & HSD
2024 - Understanding Dietary Considerations Optimize Digestion and Gut Health - Lorna Ryan
2024 - Effectively Navigating Towards Professional, Collaborative, MDT Support - Maggie Buckley
2024 - Understanding Supplementation: Key Products, Formulations, and Efficacy - Lucy Peel
2024 - Dietary Considerations for Surgery, Prolapse, and Colorectal Dysfunction - Sophie Medlin
2024 - Supporting Neurodivergence: Dietary Considerations and Management Tools - Mel Grande
2024 - Integrating Dietary Advice: Formulating Your Management Plan - Luke Hassan
2024 - Non-oral Nutrition: Exploring Clinical Need and Home Nutrition Support - Sherry Tarleton
2024 - Swallow Concerns: Targeted Support for Safe Food and Liquid Intake - Laurie Bilyeu
2024 - Nutrient Testing: Exploring Key Biomarkers and Interpretation - Dr. Jessica Pizano
2024 - Nourishing the EDS Body: Exploring Evidence for Dietary Protocols - Helen Spriggs
2024 - Pacing: Enabling Independence of Food Shopping, Meal Preparation, and Eating - Emily Cochrane
2024 - Dysautonomia: Exploring Dietary Management for OI, POTS, and Headache - Helen Spriggs
2024 - Mast Cell Disorders: Optimizing Dietary Management in MCAS & Mastocytosis - Bonnie Nasar
Pathways to Progress! 2025 International Scientific Symposium
2024 - Food, Fear, and Dietary Restrictions: A Safe Approach to Disordered Eating - Alison Holloway
2024 - Food Allergies: Understanding Complexities of Presenting Symptoms and Assessment- Anna Pettit
2024 - Chronic Pain: Exploring Dietary Management of Pain - Dr. Jessica Pizano
2024 - The Food Matrix: Understanding Food Types and Digestion - Lorna Ryan
2024 - Pain Studies - Dr. Anne-Marie Malfait
2024 - Research for All: Supporting Participation of Marginalized Communities - Dr. Serwet Demirdas
2024 - EDS Classification: Process & Points of Discussion - Prof. Fransiska Malfait
2024 - Q&A Session - Insights and Management Strategies in Rare Disease
2024 - Variants of Unknown Significance for the Rarer Types of EDS - Dr. Roberto Mendoza-Londono
2024 - Living With Heritable Vascular Disease: Exercise and Activity - Dr. Siddharth Parakash
2024 - Managing Lung Complications in EDS - Dr. Enid Neptune
2024 - Periodontal EDS: The Key to Hypermobile EDS - Dr. Anne Maitland